End of life care

Z51.1


The management of a patient who is imminently terminal (death suspected to occur within a few days or weeks), should include:

  • Communicating honest, direct, compassionate, and culturally sensitive information regarding the prognosis, and symptoms that might develop.
  • Relieving physical, spiritual and emotional distress in the patient and family.
  • Treating easily manageable complications that cause suffering.
  • Stopping all unnecessary medicines.
  • Limiting hospital admissions, if possible.
  • Ensuring that parents/caregivers are adequately counselled.
  • Decision making as to the preferred place of death (home, hospice, hospital) and referral to community based services where available (hospice, palliative, and home-based care services).

Indications for referral for in-patient hospital or hospice care:

  • Hypoxia and respiratory distress where oxygen therapy provides relief. IV/ nasogastric fluid requirements or medication administration needed to relieve suffering.
  • Carer/s unable to cope at home.

Feeds and fluids at the end of life:

  • Anorexia and refusal of feeds/fluids in dying patients is a normal phenomenon.
  • Encourage the family to ‘feed for comfort only” and reassure them that the dying patient is not hungry.

Investigations at the end of life:

Investigations should be kept to a minimum and only done if it might contribute to the patient’s comfort.

Antibiotics at the end of life:

  • Oral antibiotic therapy might not be indicated. Refer to the patient’s palliative care plan if available, or consult a palliative care trained doctor.